Caregiver Affirmations

Caregivers for Alzheimer’s and dementia face special challenges and many responsibilities. Be sure you are taking care of yourself and staying strong emotionally. Join one of our Caregiver Support Groups available in many cities or our online community, ALZConnected. In the meantime, we hope these thoughts listed below help guide your mind in a positive, healthy direction. And, as always, you can call us anytime at 1.800.272.3900 for support.

  1. I will hold on to my passions, because they are the essence of who I am
  2. I will give myself credit for staying strong despite being pushed to my limits
  3.  I will forgive myself when I occasionally blow it
  4. I will look for the gifts that only this type of tragedy can afford
  5. I will let the love flow, even when it is hard
  6. I will expect that some people will find it difficult to visit my loved one. That’s okay—it doesn’t mean that they’ve stopped caring.
  7.  I will make meaning out of this disease
  8. I will do one thing for myself this month
  9. I will ask one person to do one thing for me this month
  10.  I will accept help from one person this month
  11.  I will give myself credit for what I have accomplished
  12.  I will accept the limits of what I can do
  13. I will forgive myself in advance
  14.  I will accept that very minute is a chance to start over
  15.  I am not alone because I have my support group members Even though I feel the stress of caring for my loved one, I am thankful to have them in my life.
  16. I know that I have done my best even if I fall short of what others expect of me Given the choices, I made the best decision at the time. My choices may be limited and beyond my control, yet I make the best decision I can.
  17. There are no perfect solutions and no perfect families. If I had selected another course of action, I might now be having doubts about that as well. Things probably would have been worse if I had done nothing.
  18. New problems are not related to what I did or didn’t do.
  19. I know it’s easy to second guess or criticize from a distance. It is not possible to compare one person to another. Choices, options and lives are different.
  20. I can only do my best. I can’t do it all.
  21. I must consider “good-enough-for-now” solutions.
  22. Family members have competing needs and loyalties. I choose to stay focused on my loved one.
  23. Compromise is necessary for each to get some of what they need and want. We must continue to celebrate good times as a family and feel good about what we have been able to do for and with each other.

You can print out these Caregiver Affirmations HERE.

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Rally in Tally: How Everyone Can Help

Rally in Tally is Jan. 16 and 17! Florida has the second-highest incident rate of Alzheimer’s disease in the country. Your voice is critical to raising Alzheimer’s awareness and urgency.

WHAT YOU CAN DO

Join us in Tallahassee. Be our special guest as all four Alzheimer’s Association Chapters of Florida host “Rally in Tally” – a unique state advocacy experience where you will meet with state legislators, tell your story and explain why it is important for them to make Alzheimer’s issues a top priority! You can come for both events or just one.

Lighting the Florida Capitol in Purple for Alzheimer’s

The Old Florida Capitol will be lit up purple for the annual “Rally in Tally.”

January 16 – Tuesday Night at Sundown we will hold a “Purple Lighting Ceremony” on the steps of the historic, Old State Capitol with state legislators (approximately 30 minutes)

January 17 – State Advocacy Day on Wednesday when legislative meetings will take place in the new Capitol Building

If you do not live in Tallahassee, please see the contact information below and we’ll see if there are any services shuttling to the Capitol. Some areas have shuttles to the Capitol (on a first come, first serve basis) and some people are driving on their own.

Plakon

Rep. Scott Plakon (R-Longwood) meets with constituents in the Capitol Building.

For more information please contact:

Cyrena Duncan or 727-259-2318 if you live in the Gulf Coast

Evan Holler or 904-472-6641 if you live in Central or North Florida

Jennifer Braisted or 561-967-0047 if you live in Southeast Florida

Can’t attend? That’s okay. There are other ways you can help. 

Show your support on social by sharing your Alz story or sharing posts from advocates at the event on January 16 & 17.

Follow Central and North Florida on Facebook, Twitter, and Instagram.

Follow Southeast Florida on Facebook, Twitter, and Instagram.

Follow Florida Gulf Coast on Facebook, Twitter, and Instagram.

Call, tweet or email your state legislator and let them know we must make Alzheimer’s a priority in Florida.

Find your state senator here.

Find your state representative here.

FLORIDA IS UNITED. TOGETHER, WE WILL #ENDALZ.

My “Rally in Tally” Experience

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Cyrena Duncan, Public Policy Manager, Alzheimer’s Association, Florida GulfCoast Chapter

Each year Rally in Tally reinforces the overwhelming passion and enthusiasm of Alzheimer’s advocates in the State of Florida. It is an opportunity to relentlessly convey the ultimate goal of making Alzheimer’s disease a top priority.  While I remain dedicated to the Alzheimer’s Association’s mission through my public policy efforts, being afforded the opportunity to travel to Tallahassee each year with a group of impassioned caregivers, persons with dementia and advocates truly creates a sense of solidarity and community. And reflects the commonality amid the diversity that exists among individuals affected by this disease.

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Rally in Tally allows those directly affected by Alzheimer’s disease to genuinely
connect with others based on their personal journey and collectively voice their experiences living with or caring for someone with the disease to ensure our state legislators fully appreciate the disease process. Last year, during each State meeting, what remained most significant was the courage each and every caregiver, family member and person with the disease presented. They never hesitated to enthusiastically use their personal experiences to create a vivid picture of the disease to help ensure future generations live in a world without Alzheimer’s.

Rally in Tally 2018

On January 16 and 17, 2018 all four Alzheimer’s Association Chapters of Florida host “Rally in Tally” – the primary advocacy event that offers opportunities to meet with State legislators.

We will light the Capitol Building purple the night before at dusk to shine a beacon of hope for all those impacted by Alzheimer’s disease and kick off Rally in Tally.

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Join Us!

If you live in Tallahassee, you can join us the morning of January 17th beginning at 9:00 a.m. at the Old Capitol Building in the old Senate Chambers. Below, and attached are some details. We will be validating parking in Kleman Plaza.

If you do not live in Tallahassee, please see the contact information below and we’ll see if there are any services shuttling to the Capitol. Some areas have shuttles to the Capitol (on a first come, first serve basis) and some people are driving on their own.

For more information please contact:

Cyrena Duncan or 727-259-2318 if you live in the Gulf Coast

Evan Holler or 904-472-6641 if you live in Central or North Florida

Jennifer Braisted or 561-967-0047 if you live in Southeast Florida

Why I Walk – Tim Roche

 

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Why do I walk? I walk for a lot of reasons. I walk for my grandma that was diagnosed
with Alzheimer’s four years ago. I walk for my grandfather whose health deteriorated from the stress of seeing his wife forget who he was. I walk for my mom who is the most incredible caregiver and woman that I know, and who shows me every day what it means to truly love and care for someone. Most of all, I walk for hope. I know the struggle of seeing how Alzheimer’s affects not only the person with the disease, but all of the people who love them. It’s not easy and I know that there are millions of other people just like me who have faced the same struggle. The Walks to End Alzheimer’s are so much more than just a Walk. They are symbols of hope and support for every person affected by the disease. If you have ever been to a Walk, IMG_2140.JPGyou know how incredible it is to see tons of people coming together to support a common cause. It really is a beautiful event and touches everyone who walks, volunteers or is involved. I walk because if other young people my age who are the future see how much I care, maybe they will too. That’s why I walk.

Why do you?

#WhyIwalk #Walk2Endalz #ENDALZ

Get Social with Us at the Walk to End Alzheimer’s!

The Walk to End Alzheimer’s season in Central and North Florida starts Saturday, September 23. We are so excited to see everyone’s purple and hear your stories as we fight for Alzheimer’s first survivor!

Help us raise Alzheimer’s awareness even further by sharing your Walk day with us on social.

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Tell your story.

Social media makes it easy to let the world know you’re committed to the fight against Alzheimer’s. Share why you’re walking to inspire others to join your team and donate toward your fundraising goal.

Time it right.

Once you’re registered as a participant, get the word out by sharing your personal participant page through Facebook, Twitter, LinkedIn and Instagram. Use social media to update friends and family on your fundraising progress, share photos from Walk day and thank donors for their support.

Add hashtags.Social Hashtags

Hashtags make it easy for the entire social community to rally around a cause. Use #Walk2EndAlz and #ENDALZ in your posts and with your photos to create awareness of your participation. Search these hashtags to join a larger conversation with other participants and the Alzheimer’s community.

Easy tips:

• Download our Facebook app.
Schedule your posts leading up to the event, use a Walk cover photo, share your fundraising progress and more with this easy-to-use app.

• Tweet for support.
Tweet your personal URL and ask others to “Donate now,” “Join my team” or “Share this!” Make sure to include the hashtags #ENDALZ and #Walk2EndAlz.

• Tap into your professional network.
Share your reason for ending Alzheimer’s and your fundraising goal on LinkedIn, and ask contacts and colleagues for their support.

• Show and tell.
Use Instagram to tell your story — your reason to end Alzheimer’s — with a photo. Don’t forget to use hashtags #ENDALZ and #Walk2EndAlz.

• Use your best manners.
Thank your donors publicly using social media. Include a link to your Walk participant page in your message so others can donate.

• Follow us.
Follow our Chapter on Facebook (facebook.com/AlzCNEFL), Twitter (@alz_cnfl) and Instagram (@alzcnfl) to get the latest event news, read about fellow participants and enter giveaways.

• Check in on Walk day.
Use Facebook to share your Walk-day experience and inspire last-minute donations.

• Select our Snapchat Geofilter.Social Snap
Select our custom Snapchat geofilters at Walk. Be sure your location services are on and swipe until you see it. Be sure to share it to “Your Story”.

 

Sample Posts

Not sure where to start? Raising awareness and funds through social media is as easy as copying and pasting the messages below. Don’t forget to add a link to your personal fundraising page and to upload photos that tell your story.

Facebook/LinkedIn/Instagram

  • I Walk to End Alzheimer’s for the more than 5 million Americans living with the disease. Follow my footsteps and join my team today! [Link to personal Walk page] #ENDALZ #Walk2EndAlz
  • I am walking to end Alzheimer’s for my [grandma, grandpa, brother, sister, the future]. Please donate to my team today. Together we can end Alzheimer’s! #ENDALZ #Walk2EndAlz [Link to your Walk page and upload photo of the person you’re walking for]
  • We’re walking to end Alzheimer’s on [date]. Join [team name] or donate to help us ght Alzheimer’s. [Link to personal Walk page] #ENDALZ #Walk2EndAlz
  • I am at [insert percentage] of my fundraising goal for Walk to End Alzheimer’s! Please donate and help me reach 100 percent. [Link to personal Walk page] #ENDALZ #Walk2EndAlz
  • I beat my fundraising goal for Walk to End Alzheimer’s! THANK YOU. Alzheimer’s disease is all around us, but the power to stop it is within us. #ENDALZ #Walk2EndAlz [Include photo from Walk]
  • I walked to end Alzheimer’s today! Thank you to everyone who donated and cheered me on. Together we can end Alzheimer’s. #ENDALZ #Walk2EndAlz [Include photo from Walk]

    Twitter

  • 5 million+ Americans are living with Alzheimer’s. This is why I #Walk2EndAlz. Join my team! #ENDALZ [Link to personal Walk page + photo of who you are walking with or for]
  • I am walking to end Alzheimer’s for my [grandma, grandpa, brother, sister, the future]. Donate 2 [team name] & help #ENDALZ [Add photo of the person you are walking for and link to your Walk page]
  • We’re participating in the #Walk2EndAlz on [date]. Join our team or donate 2 help #ENDALZ. [Link to personal Walk page + photo of who you are walking with or for]
  • I’m at [insert percentage] of my fundraising goal for #Walk2EndAlz! Please donate & help me reach 100% [Link to personal Walk page + photo of who you are walking with or for] #ENDALZ
  • I beat my fundraising goal for Walk to End Alzheimer’s! THANK YOU. Together we can #ENDALZ. #Walk2EndAlz [Add photo from Walk]
  • I’m at the #Walk2EndAlz, walking for my [grandma, grandpa, brother, sister, the future]! You can still donate toward my fundraising goal. Help #ENDALZ! [Link to personal Walk page + photo of you at Walk]
  • I walked to end Alzheimer’s today! Thank you to everyone who donated. [Add photo from Walk] #ENDALZ #Walk2EndAlz

An Insider’s Look at Alzheimer’s Research Trials

Clinical trials to find more effective medication are crucial to ending Alzheimer’s disease.  Research over the last decade has focused on medications that can slow or reverse the brain damage caused by Alzheimer’s rather than just treating the symptoms. More clinical trial volunteers are needed now so that the research can be completed quicker.  Participating in an Alzheimer’s study can be an interesting and positive experience. The study coordinator plays a large role in that experience. Pat Riddle, CCRC, has been a Renstar Medical Research study coordinator working on Alzheimer’s clinical trials for over 10 years. Pat offers a personal and unique perspective on working with Alzheimer’s clinical trial patients.

You have been involved in Alzheimer’s research for over a decade. What positive changes have you seen in research during this time?

Pat Riddle: There have been no new medications developed to treat AD since 2003 and this is sad and unacceptable.  The positive change now is that there is an awareness of the magnitude of this disease and there has finally been an emphasis on the development of new treatments and allocation of funds to do this.  Also, the medications that are currently approved for treating AD only temporarily help memory and thinking problems but our current pipeline of promising new treatments deals with the underlying cause of AD and offers hope that they can conquer this disease and stop Alzheimer’s disease.  There is also a greater emphasis on the importance of early detection which can often begin with a memory evaluation done by a trained, certified professional.  I do several memory evaluations each week, at no cost to the patient, and these evaluations can be very helpful in determining if there is significant memory impairment.

What is it like working daily with individuals living with mild cognitive impairment and Alzheimer’s disease and their caregivers?  

PR: Working with patients with mild cognitive impairment and Alzheimer’s disease and their families runs the full gamut of emotions. Offering them involvement in research provides purpose and hope for all of us.   We start and end our visits with our patients and families with a hug and this is the best part of our day.

Being a caregiver of someone living with Alzheimer’s is often difficult and frustrating. What advice would you give to their family and friends to help support the caregiver?

PR: The best advice I can offer that will help caregivers is to REALLY BE THERE FOR THEM and stay involved.  Be there to listen and also give your time to help.  This is 24/7 with no escape for caregivers.  Just sitting with patients to allow the caregiver some down time away helps.  Also be there to listen and provide support. Stay a part of their lives.  I have heard so many times that “our friends don’t come around anymore.”  Tell everyone not to stay away because you feel sad or don’t know what to say.  Just come and be with them….they need your time and support.

Can you describe some of the positive experiences you have had while dealing with mild cognitive impairment and Alzheimer’s patients? 

PR: We work with many patients who have been in our clinical trials for several years.  Seeing some of these patients maintain their quality of life and independence is the reason we come to work every day and do what we do.  To see some of our patients living their lives to the fullest and enjoying their retirement years, I cannot express how overjoyed I am to see this and be a part of their lives.  

Renter Medical Research is a proud to be

The Presenting Sponsor of the Ocala Walk to End Alzheimer’s.

Walk Community Partner Exeuent Slide

Why I Walk – Neil Flynn

IMG_3289 (1)I had multi-colored purple (i like to call it lavender) highlights put in my hair in honor of my parents, both of whom have been afflicted with dementia. Purple is the trademark color of Alzheimer’s and their annual Walk is 10/14. Any time my testosterone level dropped when thinking about having the coloring done, all I had to do was think about how this cruel disease has wrecked havoc on two non-deserving people. My Mom is 94 years old. Tomorrow, she won’t remember today. For over five years my Dad progressively worsened until he had to be institutionalized, for his safety and the safety of others. He hated every minute of every day and always wanted out. He IMG_3287wanted out so bad, he pulled the fire alarm, knowing confusion would entail and he’d have a better chance at escaping. Another time, as I was going up the elevator to visit him, the elevator door opened and there he was with his walker ready to escape. I lovingly said, “Get your a_s back in there.” I miss him more now than ever.

RiverView Senior Resort – Follow Our Lead at this Year’s Walk to End Alzheimer’s

RiverView Senior Resort chose to become the Presenting Sponsor of the 2017 Walk to End Alzheimer’s in Brevard for a number of reasons. First and foremost, we work with and care for residents with varying degrees of Alzheimer’s Disease or other forms of 15111080_572669036254141_2983148413124286605_odementia. It touches our lives every day. It also breaks our hearts to see people you care about slowly succumb to the disease. Second, we believe in the Alzheimer’s Association’s work to advance the care, support and research to find the cure.

At RiverView, we have stepped up to do our part to end Alzheimer’s – one of the fastest growing diseases in the United States. As Alzheimer’s disease is the sixth-leading cause of death in the United States, we want to help build awareness of the disease and what each of us can do to help. One in three of our residents die with Alzheimer’s or another dementia. Our investment and commitment to the mission of the Alzheimer’s Association demonstrates our passion about finding a cure for this terrible disease. As this year’s presenting sponsor, we are aggressively reaching goals we have set to make a difference through this wonderful event.

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In our own facility, we do everything we can to help our residents with memory loss to live a rich and fulfilling life at RiverView. Our Heartfelt Connections™ Memory Care Program is built on the belief that, with memory loss, what remains is far more important than what is lost. So our highly trained, competent, and compassionate staff captures each resident’s unique life story—a legacy of lasting details about each resident’s family, friends, career, hobbies, likes, and dislikes. Memories fade, but past relationships and experiences continue to shape residents’ lives each and every day.

We invite everyone to visit our large tent at the entrance of the 2017 Walk to End Alzheimer’s – Space Coast on Saturday, September 23, 2017. Join us and 75 other teams who are “walking the walk” for a cause that can benefit everybody in one way or another. Together, we can take the steps necessary to end Alzheimer’s once and for all.

We invite you to join our Walk team. Just stop by RiverView Senior Resort to learn more and tour our facilities while you are here. Surrounded by Florida’s Intracoastal, our assisted living is located in Palm Bay and features aging-in-place with nurses on onsite 24/7, fine dining served any time throughout the day, our wellness program and stunning views of the Indian River.  Residents have multiple options of private studio or one-bedroom apartments and can enjoy fishing off our pier, relaxing in our billiards and card room or watching manatees and dolphins from the heated outdoor pool.

RiverView Senior Resort – proud Presenting Sponsor of the 2017 Walk to End Alzheimer’s – Space Coast.

3490 Gran Ave. NE
Palm Bay, FL 32905

RiverViewSeniorResort.com

(321) 312-4555

Assisted Living Facility License #12862

 

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Why I Walk – by Jeanne Pope

“It is hard to write this blog entry.  Alzheimer’s Disease has affected so many people in my life. Two of the most important women in my life were my mother and my mother-in-law.  I watched as these two loving and vibrant women had their lives shattered by Alzheimer’s.

As a caregiver, I know the hardships and the blessings that come with spending the last of my mother-in-law’s life with her. Wyatt and I wanted to give this gift of care to her. Needless to say, we want to see a cure for this terrible thief of the vibrancy, of the personality, of the relationships we had with our mothers.

Please join us for the Tallahassee Walk to End Alzheimer’s on October 14, 2017. We appreciate any and all support you can give to this great cause.”

-Jeanne Pope of Pope’s Pines

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Tips for Traveling

5 Travel Tips for Alzheimer’s Caregivers

Traveling with your loved one stricken with Alzheimer’s disease doesn’t necessarily have to be a thing of the past after diagnosis. The key to ensuring more quality leisure time with your loved while creating precious memories along the way comes with simple preparation, planning and safety. Employing this following guide will ensure an enjoyable and relaxing trip for everybody.

1: Be Realistic

It is important to think about how far advanced in the disease your loved may be. Are they still able to travel far from home, or is a simple day trip to a closer destination more reasonable? To what degree of physical mobility do they still have? Whatever will bring about the most pleasure possible is the main point to consider by a caregiver.

2: Be Safe

An Alzheimer’s patient who may find themselves in unfamiliar surroundings has a higher risk of wandering and getting lost. It is always a good idea to make sure that your loved one is with yourself or someone whom they’re familiar with at all times

3: Be Strategic 

Consider the time of day in which your loved one is at their best, and schedule your time of departure (car ride, air travel) during those hours. This prevents confusion and agitation that can arise when leaving home or where you’re staying.

4: Be a Communicator 

Providing a detailed itinerary to emergency contacts is the best way for others to keep tabs on you and your loved one, especially if your loved one is traveling alone. Notifying hotel and airline staff that the person you’re traveling with has Alzheimer’s disease is another good idea to ensure any helpful or necessary accommodation during your trip.

5: Be Prepared 

Aside from the necessities of remembering to bring along your loved one’s medications, it is also important to keep comfort items on-hand such as blankets, pillows, or their favorite coat in case he or she becomes anxious at some point while traveling. Keeping to a schedule and leaving for your destination within a reasonable amount of time reduces the stress experienced by your loved one that may come around in a case of rushing to catch your flight or dinner reservation.