|June 19, 2017, Orlando, FL – This Wednesday, the City of Orlando remains vibrant, strong and committed to casting a spotlight on Alzheimer’s disease as the City goes “purple with a purpose” for the second year. At sundown Wednesday evening, many different public venues will be lit purple to spread awareness for Alzheimer’s disease and its now global event, “The Longest Day”. The Longest Day is the summer solstice, and the special day that caregivers are celebrated all over the nation and the world…
Orlando venues being lit purple (see 2016 pictures below):
· Astrogenesis II
· Global Coverage
· Take Flight
· Cedar of Lebanon
· Amway Center Sign
· Orlando’s Tower of Light
· Lake Eola Fountain, Lake Eola Park – Downtown
· Orlando Sign at Citrus Bowl
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support and research. It is the largest nonprofit funder of Alzheimer’s research. The Association’s mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Its vision is a world without Alzheimer’s. Visit alz.org or call 800-272-3900.
Designed to meet the educational needs of neurologists, psychiatrists, internal medicine, family medicine practitioners, and other HCPs (NPs, PAs, Clinical Nurse Specialists, etc.) who would like to receive additional training in the assessment and care of patients with cognitive impairment – RSVP for a Meeting of the Minds Summit on June 14th, 2017.
Welcome to Alzheimer’s Association’s Blondes vs. Brunettes®, where two teams of women – divided to reflect the age-old rivalry between blondes and brunettes – compete in a flag football game to help raise awareness and funds in the fight against Alzheimer’s disease.
Our passion and hard work will take us from practice to the playing field, but our success will rely upon the support of our friends and families and upon all of those willing to donate to this important cause. Together, we can tackle Alzheimer’s
Katie Britt (Captain)
Pace Callaway (Coach)
Rob Summers (Coach)
Sam McCray (Coach)
Victoria Richmond (Captain)
Rachel Steinman (Captain)
Join us at the Post-Game Celebration!
Florida Wing Factory 3551 Blair Stone Road Tallahassee, FL 32301
10% of the proceeds will benefit this year’s game!
Want to join in on the fun?
If you’d like to join us as a player, coach, volunteer, sponsor, or community partner, please email Hannah Volz, Associate Director of Community Outreach, at firstname.lastname@example.org.
Find us online at bvbtallahassee.org or on Facebook @BlondesvsBrunettesTally.
Our Alzheimer’s Association traveling cards can be helpful in many situations – whether traveling to the grocery store, a restaurant or even through the airport these cards can help you communicate to others that extra patience is required in a quick, discreet way. You can contact your local office for cards by calling 1.800.272.3900 or print from your own home using these files:
- My Companion has Alzheimer’s Cards
- My Companion has Alzheimer’s Cards in Spanish and English
- I have Alzheimer’s Cards
These files are made to work with business card template paper by Avery 5371 but of course regular paper and a pair of scissors always works as well.
• For more traveling tips, visit Traveling Tips for People in the Early Stages.
• For information on managing activities, check out Alzheimer’s Association Summer Safety Tips
• On how to navigate the holidays, take a look at Holiday Tips – How to Manage the Holidays when your loved one has dementia or Alzheimer’s disease.
from the Tallahassee Democrat…
An age-old rivalry is being put to good use.
Tallahassee’s annual Blondes vs. Brunettes flag football game is coming up next month. The game is part of the Alzheimer’s Association RivALZ league, which raises funds nationwide for Alzheimer’s awareness.
Hannah Volz, a spokeswoman for the Central and North Florida chapter of the Alzheimer’s Association, said about 40 different RivALZ games happen all over the country. They aren’t all Blondes vs. Brunette games, any rivalry counts for RivALZ.
Tallahassee’s event is on May 13th on Florida High’s campus.
For Volz, the issue is a personal one. Many players who come out to participate have been impacted by Alzheimer’s in some way – if it’s not personal, there aren’t many degrees of separation.
“I lost three grandparents to Alzheimer’s and one to vascular dementia,” she said. “This is a cause that’s really close to my heart. It’s been kind of cool to go from being a volunteer to being a staff person now working for the Alzheimer’s association.”
The game isn’t limited to blondes and brunettes, of course. People outside those two hair colors are considered free agents, capable of joining either squad.
“We welcome everybody,” Volz said with a smile.
The fundraising goal for this year’s event is $20,000. As of Sunday evening, $8,387 has been raised toward that goal.
There are still fundraising events coming up before the game – the group has a Facebook page with player stories and updates on upcoming events. Volz said between 100 and 200 people come out each year to the event.
Tori Richmond, who has been participating in the event for the last four years, said thanks to events like the RivALZ game, there’s more awareness of Alzheimer’s.
“My grandmother started showing signs of Alzheimer’s about two years before she was officially diagnosed,” she said. “If my family would have had more awareness about what the signs are, personality changes, I think we could have helped her out a lot more.
“Just learning more about it and being able to educate other people about it and (show) how far we’ve come in terms of Alzheimer’s awareness and research.”
Richmond, a former Florida State swimmer who plays for the Brunettes squad, said the event is for anybody who wants to player. She has personal experience with Alzheimer’s, that’s not the case for every member of the team.
Plus, not every member of the team is a former college athlete.
“We practice so much that ultimately, you will see an improvement,” she said. “Last year, one of our teammates came out having never played a lot of football. She was probably one of our most dedicated players. She came to every practice and she ended up catching an interception in the game.”
Richmond said playing in the game and meeting the women involved has given her a different perspective on Alzheimer’s and its impact in Tallahassee.
“I look forward to this every year,” she said. “Every year we start earlier and earlier. It’s a social thing, as well as just doing something for the community and learning more about the community. All of the women are leaders in this community.”
For more information, visit bvbtallahassee.org.
from McKnight’s Senior Living Article
Fifty-one percent of tweets by private users of Twitter accounts contain comments that are stigmatizing when they mention dementia or the people who have it, according to a study recently published in Journals of Gerontology: Psychological Sciences.
Researchers at Oregon State University, Corvallis, OR, made the determination after they developed software and analyzed 33,000 tweets that made some reference to Alzheimer’s disease or another form of dementia.
“It was shocking to me how many people stigmatized Alzheimer’s disease and reinforced stereotypes that can further alienate people with this condition,” said one of the paper’s authors, Karen Hooker, Ph.D., who holds the Jo Anne Leonard Petersen Endowed Chair in Gerontology and Family Studies in the OSU College of Public Health and Human Sciences.
The stigma, she added, can lead people with dementia to perform worse that they would have otherwise, due to negative expectations and stereotypes.
“This type of stigma can make it less likely that people will admit they have problems or seek treatment, when often they can still live satisfying, meaningful and productive lives,” Hooker said. “Our attitudes, the things we say, affect others, and social media is now amplifying our ability to reach others with thoughtless or hurtful comments.”
Those concerned about dementia and those who have it, the authors suggested, can try to be more conscious of their own comments on social media and more willing to engage with others who are using language that seems insensitive or potentially hurtful.
“We should also consider ways to combat stigma and negative stereotypes by tweeting about the positive experiences of persons with dementia and people in their social networks,” Hooker said.
Lead author of the study is Nels Oscar, an OSU graduate student in the College of Engineering. Additional authors include Pamela A. Fox, Racheal Croucher, Riana Wernick and Jessica Keune.
Hats, Horses and Hope! Thank you to everyone for helping us put together our First Annual Derby Viewing Party: Hats, Horses & Hope; what a beautiful evening it was!
No matter which horse was crowned the champion on Derby Day (“Always Dreaming” for all you Derby enthusiasts); the Alzheimer’s Association took the ultimate prize!
The Hats, Horses & Hope party was a festive and exciting occasion where participants enjoyed watching the Kentucky Derby and did a little friendly betting for prizes, while raising funds and awareness for Alzheimer’s programs and support services in our area.
We are so grateful for all the support and time our local volunteers and partners have given to make this important event possible!
Special Thanks to:
Our Community Partners:
Jockey Level Sponsors:
3.6.9 Chinese Restaurant
4 Rivers Smokehouse
Air Tech of Central Florida
Amie Stafford, Portraitist
All In! Casino Events
Apple Blossom Florist and Gifts
Be On Park Fine Jewelry
Blown Away Winter Park
Boston’s Fish House
Briarpatch Restaurant & Ice Cream Parlor
Brookdale of Lake Orienta
Charmine Frase Hair Design
Chi Pan Asian
Cooper’s Hawk Winery and Restaurant
Dr. Jennifer Ortega, DMD
Edible Arrangements Winter Park
Eye Physicians of Central Florida
Hand & Stone
Hawks Landing Golf Club
Laughing Monkey Pottery
Longwood Veterinary Clinic
Luma on Park Avenue
M.A. Porter, Artist
Ma’s Art and Stuff
M&M Nail Salon
Maitland Avenue Dental
Neha Doshi, MD
Orlando Art Museum
Orlando Shakespeare Theater
Neha Doshi, MD
Rock and Brews Oviedo
Romano’s Macaroni Grill
Siegel’s Clothing Company for Women and Men
St. Johns Rivership Company
TerraMia Wine Bar and Trattoria
The Great Escape Room
Tim’s Wine Market
Truffles and Trifles
Tuni Trendy + Chic
Viet Garden Restaurant
Vinzo’s Italian Grill and Pizzeria
Youfit Health Clubs
Orlando Science Center
Salsa Heat Dance Studio
Saylor Physical Therapy
Winter Park Distilling Company
Nearly 25 percent of Florida’s population is age 60 years and older, and more than half a million of these seniors are living with Alzheimer’s. To learn more about the prevalence and treatment of Alzheimer’s, the Orlando Sentinel Editorial Board tapped the expertise of Rosemary Laird, M.D., a geriatrician at Florida Hospital’s Centre for Senior Health. As a backdrop, Florida’s Legislature is considering a $20 million budget cut that would affect seven memory disorder clinics in the state, even as Sen. David Simmons, R-Altamonte Springs, sponsors a bill to designate a memory disorder clinic at Florida Hospital in Orlando.
Q: What does treatment for Alzheimer’s involve?
A: Ideally, treatment for Alzheimer’s disease involves a team of professionals trained in the disease and experienced with the course of the illness assisting patients and their families through the course of this chronic illness. I say “ideally” because that type of team-based care is not readily available everywhere. Often it is found in academic medical centers and some community-based health systems. To address the range of needs an ideal care team includes a medical doctor, an advance-practice registered nurse, and a licensed clinical social worker, and perhaps even a pharmacist. Florida Hopsital’s Centre for Senior Health is an example of a team-based clinic providing full range of diagnosis and care support.
There are traditional, FDA-approved medications that have shown benefit in about 40 percent to 50 percent of the patients who take them. Benefits can include slowing the decline of cognitive ability or memory loss, and slowing the loss of function.
There is a misconception that because there is no “cure” for Alzheimer’s, there is no “treatment.” That cannot be further from the truth. There are many strategies we can take to assist the patient and family in coping with the changes of the illness, adapting their day-to-day routines, as well as the need to address symptoms that are common accompaniments of Alzheimer’s disease such as depression, anxiety, sleep disturbance, weight changes, etc.
Sadly, even among physicians sometimes there is a pessimistic outlook communicated that there is “nothing to be done,” so we try to make people aware of the availability of support.
Q: How prevalent are Alzheimer’s and other diseases that affect memory?
A: According to the Alzheimer’s Association, more than 5 million Americans are living with the disease. There are 480,000 people with Alzheimer’s disease or related disorders in the state of Florida. Here in Central Florida, we believe there are about 30,000 patients with Alzheimer’s living in Orange, Osceola and Seminole counties.
Q: Are certain populations more at risk?
A: Almost two-thirds of Americans with Alzheimer’s are women, and there are differences among different ethnic groups as well. African-Americans are about twice as likely to have Alzheimer’s or other dementias as older whites. And Hispanics are about one and one-half times as likely to have Alzheimer’s or other dementias as older whites. Studies have found that diabetes and cardiovascular risk factors — such as high levels of blood pressure, blood sugar and cholesterol — increase the risk of dementia.
Q: What are the trends in how many people will be diagnosed?
A: This is an interesting question. There was a study that found dementia rates are actually declining. The decline may be due to an increase in medications to treat risk factors such as cholesterol and high blood pressure, and to improved awareness of the need for brain health and wellness among many seniors. But simply being 85 years old and older is a risk factor, so as the population ages in the coming decades, we will still see many, many patients.
Q: Are there any improved treatments or breakthroughs on the horizon by drug makers on Alzheimer’s?
A: The short answer, unfortunately, is no. There are many, many issues with clinical trials involving Alzheimer’s. Since the diagnosis is so difficult, it is hard to know you are testing effectiveness against Alzheimer’s when you test a drug. Some scientists believe that by the time the brain shows signs of the disease, it may already be too late to treat the damage with drugs. People should know that it’s unlikely that there will be a cure in the next 20 to 30 years. Those of us with aging parents should be prepared for the possibility that we will need to act as caregivers.
Q: What advice do you have for caregivers to help handle the burden of caring for a loved one with the disease?
A: I co-wrote “Take Your Oxygen First: Protecting Your Health and Happiness While Caring for a Loved One with Memory Loss” about this issue. And that’s a main point I would stress to caregivers. This is a long illness, involving the slow loss of ability and the increased need for care support over time, so the impacts are enormous not only on the patient but on the caregiver. You have to take care of yourself first, or the chronic stress of caregiving over such a long time horizon will add illness to your life, in addition to your loved one’s illness.
Q: What is the importance of pending legislation establishing a memory disorder clinic at Florida Hospital?
A: Since 2012, Florida Hospital has operated its self-funded memory disorder program, the Florida Hospital Maturing Minds Clinic. FHMMP provides early screening and diagnosis; helps patients manage their symptoms; provides education and training for caregivers; and conducts research. FHMMP currently conducts more than 360 new patient memory loss evaluations each year and provides services and referrals to other local organizations to additional patients and caregiver clients.
The pending legislation would add our clinic to the list of state-recognized memory disorder clinics. This change will give us a competitive advantage when we apply for state and national grants, potentially bringing federal funding home to Florida. It will also help us continue to grow our programs offering state-of-the-art diagnosis and care for patients with Alzheimer’s and related dementias and support for their caregivers here in Central Florida.
chance for participants to develop informal mutual support and social relationships. They also educate and inform participants about dementia and help participants develop methods and skills to solve problems.
The groups encourage caregivers to maintain theirown personal, physical and emotional health as well as optimally care for the person with dementia. In addition, they may provide a needed break from caregiving responsibilities.
Fellow Floridians – There is a proposal before the Florida Senate to CUT 14 Florida Memory Disorder Clinics, the Florida Memory Mobile and many other Alzheimer’s Initiatives across the state. We need to ask Senator Flores, Chairwoman, NOT TO CUT THESE IMPERATIVE PROGRAMS in Florida! We can’t afford to cut Alzheimer’s initiatives in our state!
Call Chairwoman, Senator Flores: (850) 487-5039 today and Monday! #NO2BudgetCuts4ALZ.
Florida’s network of 14 regional Memory Disorder Clinics (MDCs) provide:
- Comprehensive me
- Diagnostic services
- Treatment to individuals with symptoms of Alzheimer’s disease and related dementias
- development of training programs
- Education on how to provide care for those living with Alzheimer’s to family, direct service caregivers, respite care providers, health care professionals and the general public
They also participate in research toward effective treatments and cure for Alzheimer’s disease.
Other Alzheimer’s services are being threatened as well including the Memory Mobile that services the Florida Gulf Coast area. It is the only mobile support, prevention and education service delivery
vehicle in the country. The Memory Mobile provides many of the same services as the Memory Disorder Clinics and it able to go out into the community for outreach education, care consultations, memory education and caregiver education targeting low income, rural, and/or isolated people living with Alzheimer’s disease and their caregivers.
Two more things you can do after you have called Sen. Flores:
Call your Florida state senator. Find them here and call Friday and Monday!
Call any or all of the senators on the committee: